07.04.08
Posted in Floyd & Marilyn at 5:49 pm by Chris Roberts
Just got back from visiting with Marilyn, she was sleeping when I first went in. When she woke up the first thing she said was that Al was home, asked her if he had been to see her and she verbalized yes today. We chatted for a while and in between she kept falling asleep, asked her if she wanted me to leave and let her get some rest, she said no watch TV.
Told her that Claire and Margot would be in this month and she said she knew that, they would be here on the 22nd good good. Told her I thought it was the 12th but she insisted the 22nd. Nurse came in to check on her a couple of times while I was there, I said she is really sleeping and she said she has been sleeping a lot lately. Marilyn didn’t wake up while the nurse and I were talking.
I left around 5.00pm
Chris Roberts
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Posted in Floyd & Marilyn at 3:43 pm by Al Rosson
I went by to visit Marilyn and wish her a Happy 4th and she was doing well considering. I took her a small US Flag and took the nurses 5 bags of candy all different types.
I saw that Dean and Katie had taken her some flowers and Claire and Margot had sent her a Family Reunion card of which I read to her. I told her that they would be coming in town on the 12th to see her and she smiled.
We talked about Tanya’s need a kidney transplant and she then rested and went to sleep. I stay for about another half hour then let her know I would be taking off and I made sure she was comfortable and she said yes.
Thanks again for your continued prayers and support!
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07.01.08
Posted in Al & Tanya at 6:08 pm by Al Rosson
Well we just got in from MN and the trip went well considering.
Tanya received the news from Mayo Clinic late Friday that she is a B positive blood type and that she can only receive a kidney from an type O or B blood type.
After giving it serious thought she has decided to move in that direction and wants to try to avoid dialysis all together if possible.
Thanks again for all your prayers and support!
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Posted in Floyd & Marilyn at 2:43 pm by Chris Roberts
Marilyn was sleeping this evening when I went in, rubbed her arm and she woke up. She immediately asked what is the date. Showed her that it was June 30th and she just wrinkled her nose, asked her what was that for and she mouthed you know. I said the day of your wreck a year ago and she nodded her head and closed her eyes.
Marilyn was not able to verbalize this evening asked her if she could talk and she shook her head no. She was very quite this evening and didn’t seem to want to talk. She was coughing a lot and nurse had to come and check on her several times. Nurse did suction her, but she was still coughing very hard.
Doyle and his wife had been to visit on Sunday.
Chris Roberts
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06.27.08
Posted in Al & Tanya at 9:50 am by Al Rosson
Ok folks we are finished up at the Mayo for now. Good news is that Tanya’s kidneys are at 17% vs. the 12-15 as last thought. After the most thorough checking you can ever imagine we have been told that Tanya has a very rare kidney disease. In fact so rare the the Geneticist from the Mayo has volunteered to do all the research to determine what the disease is for free. Yes that is correct the DNA and genetic testing will done at no cost thanks to the Mayo Clinic.
The main nephrologist at the Mayo has recommended after a complete and very thorough examination that Tanya take a couple of weeks to decide what step she wants to take either dialysis or transplant. Unfortunately neither are a optimum solution the average patient on dialysis only lives 5 years and the kidney transplant patient is on transplant meds for the rest of their life of which are known to have tremendous side effects and can cost as much as 5-6000 per month. The kidney transplant nurse informed us that as young as Tanya is that she could very well need another transplant in time.
It looks like she is leaning towards transplant at this time and we would expect this to be sometime this year.
Thanks again for your continued prayers and support!
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06.26.08
Posted in Floyd & Marilyn at 11:29 pm by Chris Roberts
Marilyn was able to verbalize some this evening, was good to hear her talk again. Read her mail to her that had come in. Don Ross had been to visit yesterday, but Marilyn was asleep the whole time he was there. He left a note stating that.
Marilyn was very bloated, I mentioned that to her and she had me bring the nurse in to check. Nurse said that they would get her some medicine to help that. Before I left she was complaining of her right shoulder hurting her really bad, I got the nurse and she gave her some pain medicine.
Marilyn asked me to change her calendar before I left to tomorrow, and asked me to show her that I had changed it. She was in a good mood this evening and we had a good visit.
Chris Roberts
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06.24.08
Posted in Al & Tanya at 8:56 am by Al Rosson
OK Folks we made it to the Mayo Clinic in Rochester MN yesterday (WOW I must say it is very impressive every bit of what you would picture the Mayo to be and much more).
We spent all day doing tests and exams and unfortunately it appears at this time according to two different Kidney Specialists that due to the level of scare tissue/damage that Tanya will have to go on either dialysis or have a transplant. According to the Geneticist of which is the last Kidney Specialist that we saw she is highly recommending moving forward with a Kidney Transplant ASAP. We have a battery of further tests to run over the next few days to determine when and if she is a truly a viable transplant candidate.
We will keep you updated on our progress and thanks for your continued prayers and support!
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06.23.08
Posted in Floyd & Marilyn at 9:49 pm by Chris Roberts
Marilyn was awake and alert when I went in, she mouthed where have you been. Felt bad as I had not seen her since last Monday in St. Francis. I explained about all the appointments and things that I had planned last week, told her I was back on track and would be up to see her twice a week as I have been.
Marilyn had a lot of cards and mail, read her mail and hung her card up for her. She had some lovely flowers from Dean and Katie Reece (sp), they also visited her today. Doyle and Virginia visited on the 20th. If you go and visit Marilyn would you please see if she has any mail and read it to her.
Her nurse Terri came in took her blood pressure, 116/80. Marilyn said that she was feeling OK. Wanted to know what day and date it was, her calendar had not been changed, showed her today was Monday 23rd. She asked if I brought her chap stick, which I did and wanted some on.
If anyone visits and would like to take something to her she could always use chap stick and body and face cream. Just an idea.
Marilyn could not verbalize this evening, but we did pretty good with the lip reading. Told her I would be up either Wednesday or Thursday.
Chris Roberts
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06.19.08
Posted in Floyd & Marilyn at 4:20 pm by Al Rosson
I went out to Inola today to check in on Marilyn and to say hello before leaving for the Mayo in Manchester, MN. She was doing well considering and Annette was her nurse on duty today. She was in good spirits and was alert she kept talking about a square hole in the floor and I told her there were no visual holes in the floor to me. She seemed like she was still unsure I asked if she was glad to be home and she said yes. I asked her if she enjoyed her surprise visit with uncle Joe and she said yes that she was glad he stopped by to see her. We visited for a while and I told her that I would be back when I returned and hopefully with some better news.
Thanks again for your continued prayers and support!
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06.17.08
Posted in Floyd & Marilyn at 12:58 pm by Al Rosson
I just recieved a call from St. Francis and they are indeed transporting Marilyn back to Inola today June 17th at aproximately 1:30 p.m.
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