06.27.08

Tanya Status Update…

Posted in Al & Tanya at 9:50 am by Al Rosson

Ok folks we are finished up at the Mayo for now. Good news is that Tanya’s kidneys are at 17% vs. the 12-15 as last thought. After the most thorough checking you can ever imagine we have been told that Tanya has a very rare kidney disease. In fact so rare the the Geneticist from the Mayo has volunteered to do all the research to determine what the disease is for free. Yes that is correct the DNA and genetic testing will done at no cost thanks to the Mayo Clinic.

The main nephrologist at the Mayo has recommended after a complete and very thorough examination that Tanya take a couple of weeks to decide what step she wants to take either dialysis or transplant. Unfortunately neither are a optimum solution the average patient on dialysis only lives 5 years and the kidney transplant patient is on transplant meds for the rest of their life of which are known to have tremendous side effects and can cost as much as 5-6000  per month. The kidney transplant nurse informed us that as young as Tanya is that she could very well need another transplant in time.

It looks like she is leaning towards transplant at this time and we would expect this to be sometime this year.

Thanks again for your continued prayers and support!

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