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Mom had knee replacement surgery this morning at St. Francis and all went very well.
Mom has just been moved to ROOM# 5117 and she can be reached at 918-494-5117. She has been up and walking today thanks to physical therapy.
She was taken to recovery at about 11:30 this morning and is to be admitted to her own room within the next hour or two. I will post the Room number when it becomes available.
Thanks for your love, prayers and support!
Ok Folks,
I have great news…
We just got word that Terri Tanya’s half sister is an approved donor and everything should be a go for the transplant.
The Transplant Coordinator will now take Tanya’s case to the Hospital Committee for approval and then we should be good to go for October transplant surgery once that is completed.
Thanks again for your continued prayers and support!
Tanya received a call from her Mayo Clinic Doctor late yesterday. The Biopsy that had been sent up for further evaluation from Tulsa turned out to indicate that she has a very rare Kidney Disease known as Medullary Cystic Kidney Disease. Based on that Mayo has decided that there is no further need for any future genetic testing.
Unfortunately the past 10 days Tanya has not been feeling well at all. Based on that she feels like she needs to proceed with the fistula surgery as it has a long recovery time, and it can be as much as 6-8 weeks.
This would then allow her to have dialysis until the hospital and doctors are ready to perform the transplant.
Thanks again for your continued prayers and support!
OK Folks,
Tanya has decided to do the kidney Transplant here in Tulsa at St. Francis Hospital. She is trying to eliminate going on dialysis and would like to have a live donor. Unfortunately her family has a history of kidney issues so her family is not good candidates for being a donor. I volunteered immediately but I am a type A + and she can only take a B or O + or -.
We had a Kidney transplant Pre-Op surgery consult today at St, Francis Hospital and all went well.
If anyone is interested in being a Kidney Donor you can contact Teri Roberts at St. Francis 918-502-3900. Teri is the Transplant Coordinator Supervisor and said to ask for her or Kara. Please remember that she can only take a kidney from a type B or O blood type doesn’t matter if it you are B+ or - or O+ or -.
We are praying that the right person will come forward soon and donate the kidney that God intends her to have.
Just so you know the donor surgery today is Laparoscopic less intrusive than of the past, and the cost is paid for by Tanya’s insurance.
Thanks again for all your continued prayers and support!
Well we just got in from MN and the trip went well considering.
Tanya received the news from Mayo Clinic late Friday that she is a B positive blood type and that she can only receive a kidney from an type O or B blood type.
After giving it serious thought she has decided to move in that direction and wants to try to avoid dialysis all together if possible.
Thanks again for all your prayers and support!
Ok folks we are finished up at the Mayo for now. Good news is that Tanya’s kidneys are at 17% vs. the 12-15 as last thought. After the most thorough checking you can ever imagine we have been told that Tanya has a very rare kidney disease. In fact so rare the the Geneticist from the Mayo has volunteered to do all the research to determine what the disease is for free. Yes that is correct the DNA and genetic testing will done at no cost thanks to the Mayo Clinic.
The main nephrologist at the Mayo has recommended after a complete and very thorough examination that Tanya take a couple of weeks to decide what step she wants to take either dialysis or transplant. Unfortunately neither are a optimum solution the average patient on dialysis only lives 5 years and the kidney transplant patient is on transplant meds for the rest of their life of which are known to have tremendous side effects and can cost as much as 5-6000 per month. The kidney transplant nurse informed us that as young as Tanya is that she could very well need another transplant in time.
It looks like she is leaning towards transplant at this time and we would expect this to be sometime this year.
Thanks again for your continued prayers and support!
OK Folks we made it to the Mayo Clinic in Rochester MN yesterday (WOW I must say it is very impressive every bit of what you would picture the Mayo to be and much more).
We spent all day doing tests and exams and unfortunately it appears at this time according to two different Kidney Specialists that due to the level of scare tissue/damage that Tanya will have to go on either dialysis or have a transplant. According to the Geneticist of which is the last Kidney Specialist that we saw she is highly recommending moving forward with a Kidney Transplant ASAP. We have a battery of further tests to run over the next few days to determine when and if she is a truly a viable transplant candidate.
We will keep you updated on our progress and thanks for your continued prayers and support!
Ok Folks after asking Tanya’s Doctor to refer us to Mayo Clinic we now have an appointment with the Mayo Clinic in Rochester MN on June 23rd for further evaluation.
Thanks for your prayers and support!
Tanya is doing ok considering weak on some days as to be expected.
We are asking her local Tulsa Nephrologists for an immediate referral to the Mayo Clinic in MN at this time. We will keep you posted as things move forward.
Please keep her in your prayers and thanks for your support!
Well the doctors told us yesterday that they are truly amazed at how fast her kidneys are failing and that they have no idea what is causing her kidneys to fail. After all the tests including a CAT scan, complete blood work and Biopsy they still have no answers. They are expediting the results up to Mayo Clinic for further analysis. They mentioned when they called Mayo that based on her rapid failure she is months to weeks to having to go on kidney dialysis.
Please keep her in your prayers as we work our way through this!
Thanks for your support!